thistrippyhippie

you never think it’ll happen to you till it does 🤷🏻‍♀️ #lymedisease #latestagelymedisease #bartonella #fyp #trend #lymewarrior #foryou

#duet with @eviemeg🍉 another debbie attack. now in my left leg & both feet, neck, shoulder, left arm & hand/fingers. waiting for muscle relaxers to kick in 💗 #dystonia #dystoniaawareness #dystoniawarrior #fyp

if you watch the whole thing - thank you💜 this isn’t easy for me to talk about but i’ve been wanting to for quite a while now. there are many reasons my tics are much better these days, but there’s also a reason i don’t make tourettes/tic videos anymore and even edit tics out of my videos. 2021 had a huge effect on me that i did talk about at the time but the effects are still ongoing even now💜back then i was asked by writers and interviewers to talk about the ‘rise in tics’ with them for articles etc and i kept turning them down. in 2022 i was also invited on the documentary that channel 4 did and again i also turned that down and i’m very glad i did. it is just such a difficult topic for me, i still can’t quite believe everything that happened🥴 some things to note: - because of the inflammation in my body and brain, it’s likely i have functional tics aswell as tourettes. i have shown before the difference in my PANS tics VS my daily tics from tourettes. my PANS tics are more severe, and incredibly complex. - the ‘rise in tics’ during lockdown was a rise in functional tics, very different to tourettes which is a life long genetic disorder, has a different and slower/more gradual onset, different presenting tics & many other factors that are different. - functional tics ≠ fake tics - i believe my tics being so bad during 2020 & 2021 was due to my PANS, which makes sense because of the extreme amount of infection that was around at the time. (even though yes i’d had tics for years before then as shown in the video, but i have a mix of tourettes & PANS tics, both diagnosed) im really worried about saying something wrong but thank you for watching & listening to this and hopefully it answers all the questions i’ve been getting💜🧠 #tics #tourettessyndrome #tourettes #foryou #dailymail #foryoupage #functionaltics #encephalitis #ticsandtourettes #PANS

sharing for dystonia awareness🤍 dystonia is a neurological movement disorder which causes involuntary muscle contractions, often putting the person in unnatural positions & postures. it’s a very painful and debilitating condition. my dystonia has autoimmune causes, and i’ve had dystonia for 6 years now, but it never used to be like this. this was the 18th of february🤍 #dystonia #awareness #fyp #dystoniawarrior #lymedisease #autoimmuneencephalitis #autoimmunedisease #bartonella #foryou #dystoniaawareness

having working legs is pretty cool💗 #dance #dystonia #fyp

cutest trend 🥹 she forgot about my hand at the end 🤣 #fyp #foryou #mum #mom #trend #mumanddaughter #loveyou @Jedisgirl

can’t believe it😭 my last tonic clonic seizure was 9th of december 2024. I HAVEN’T HAD A TONIC CLONIC THIS YEAR!! who is she😭 forever grateful to my doctors for my treatment plan & antibiotics. i’ve had seizures for 8 years and literally don’t know the last time i went this long without a tonic clonic. i’ve had some absences & unusual seizure moments but nothing major or convulsive. it’s so crazy😭 it’s so hard to celebrate this win with my dystonia being the way it is but genuinely it’s baffling to me im so happy about it🥰💜☮️ #fyp #seizures #autoimmunedisease #autoimmuneepilepsy #seizurewarrior #inflamedbrain #encephalitis #lymedisease #bartonella #foryou

cheers dad🥲 autoimmune diseases suck. had my first proper tic attack in months, (possibly like a year!!) dystonia attacks and dystonic tremors are back full swing. just being around infection can make me very symptomatic, even if i don’t get the cold myself. my immune system is shit😅 #awareness #fyp #autoimmunedisease #autoimmuneencephalitis #dystoniawarrior #ticattack #tics

my grandad is an angel on earth🤎 he’s an emotional man, they haven’t seen me walk normally in almost 2 years so he was crying happy tears, even tho his little wobbly voice broke me a bit. i was so excited to show them and im so glad i filmed it. i’ll treasure this video forever🤎 #grandparents #fyp #hopecore #positive #foryou #encephalitis #lymedisease #bartonella #autoimmuneencephalitis #grandma #grandad

happy friday🩷 staying positive despite this attack which is still on going. have a good day 💓🫶🏻 #dystonia #awareness #dystoniawarrior #autoimmunedisease #dystoniaawareness #grwm #fyp

thank you universe & treatment😭💗🫶🏻on the 12th of May 2023, after feeling ‘dead’ and ‘jelly’ for a few days, my legs completely gave out in a train station, i fell to the floor and couldn’t get up. and my legs never got better. the past couple months i have seen slow improvement, and it’s built up to where i am now😭 my legs feel like mine again, they feel light, like bricks that were tied round my ankles have now been taken off. it’s not perfect, im very early days and will be slowly building up stamina, reducing foot pain, slowly increasing walking time, a bit more physio…..but finally some hope😭this is the best they’ve felt since that day in May ‘23. i’m nervous to share incase it doesn’t stay this way but im just SO happy🩷 today i walked my dog teddy myself (holding the lead) for the first time in 21 months😭it’s been on my goal list🩷🫶🏻 #fyp #positive #hopecore #lymedisease #bartonella #encephalitis #AE #autoimmuneencephalitis #lymediseaseawareness #warrior #foryou

a glee performance is a dance i can get behind🙈 haven’t seen anyone do a wheelchair version yet!🩷my 5th wheelchair dance🫶🏻 #glee #fyp #wheelchairdance #dance #trend #gleek #foryou #wheelchair

what i wouldn’t do to go back❤️‍🩹 #fyp #hugtrend #autoimmuneencephalitis #lymedisease #bartonella #braininflammation #awareness #warrior #chronicillness

*trigger warning, OCD compulsions, seizures, tics, catatonia, cannula, potentially upsetting footage* i’ve had a lot of people asking me for a while now if im actually seeing improvements from my treatment. so i made this video to show you☺️looking at some of these videos, especially from 2022 when i was really sick i can see a huge difference in my face, and im so proud of how far ive come and im so so thankful i am finally being treated. my sudden onset was when i was 14, and my encephalitis wasn’t discovered until i was 22, then my lyme disease & bartonella wasn’t found till i was 23/24. this is why its such a long journey, my doctors did tell me early on its not going to be easy because these infections have been undiscovered in my blood for such a long time. i am have soooo much further to go but seeing these improvements is so promising🤍🫶🏻 if you are on a treatment journey right now, don’t give up, stick with it. some of it is absolutely awful and might make you worse for a while, but don’t quit, it does get better🤍 #fyp #awareness #encephalitis #seizures #autoimmuneencephalitis #lymedisease #bartonella #seizureawareness #lymewarrior #dystonia #advocate #treatmentjourney

dancin out the dystonia🕺🏻✨i’ve had a horrible day of pain and ongoing contractions. but tonight i felt like dancing it out, and although it hurt, it did feel good🙈💜 dance it out dance it out & stay positive🕺🏻🫶🏻 #fyp #dance #danceitout #dystoniawarrior #cervicaldystonia #positivevibes #MentalHealth #autoimmunedisease

why do i cause chaos everywhere i go😫🤣 another day, another tic incident…. couldn’t believe i got it on video🤣 #tourettes #tics #fyp #foryou #tourettesawareness #tourettessyndrome

my cruelty free makeup routine💗(with a slight blip) filmed the 16th. this caught me really off guard (hence the ‘what the f-’🤣) and i had another attack a few hours before this was filmed, but i love how the makeup turned out💗🌞 #crueltyfreemakeup #veganmakeup #crueltyfreebeauty #dystonia #dystoniaawareness #cervicaldystonia #MakeupRoutine #dystoniawarrior #positivity #fyp @W7Makeup @Makeup Revolution @MUA Cosmetics @nyxcosmetics_uk

@palmpals are superior 😌 my legs did not enjoy the squatting😅 #palmpals #foryou #fyp #trend #disabled

with another trend going round, just remember sign language isn’t a trend it’s a language & way of communication. if you’re learning be sure to learn respectfully, from the deaf community, learn about deaf culture, the importance of facial expressions and interpretations when signing❤️‍🩹🫶🏻 #BSL #signlanguage #britishsignlanguage #fyp #dystonia #cervicaldystonia #foryou

i’ve never loved a human the way i love you. no one makes me feel like you do, you are my everything💓@Jedisgirl i may be 25 this year but i will never out grow you. i’ll always need my mum. here she is helping me dance through a mild dystonia attack over 3 weeks ago. happy mother’s day🫶🏻🌷#fyp #mothersday #mum #foryou #mumanddaughter #dystonia #dystoniawarrior