#ad ad | how to prepare in case of a power cut!💡 these tips are especially important to consider if you’re disabled or may be vulnerable during an emergency situation like this! ♿️ stay safe this winter & make sure to have emergency medications/tools/contacts on hand just in case 💘 #ad #powercut #tips #staysafe #disabled #winter #nationalgrid #disabledcommunity
⚠️ lights | wheelchair users hopping on this trend 🌈🪩💅 VD: 5 young adult wheelchair users take part in a dance trend. The camera bounces between them to the beat of the song whilst they pose. Then the camera flips to each person and one pair individually. They all repeat the same dance moves whilst the camera moves to the movement of the dance moves. The dance moves are: pushing hands away from the body with palms to the camera, 2 pushes on each side to the beat of the song, hands together at the fingertips with arms parallel moving up the body and then over the head, whilst the camera makes one smooth movement following the hands, and then arms bent and moving the arms up and down as if running to the beat of the song. #disabledcommunity #wheelchairuser #disabled #trends #neurodivergent
explaining what it feels like to faint 🧠 in this my voice sounds very slow and slurred, bht thats the pre-syncope 😵💫 often one of my first signs of an episode is brain fog and my speech slowing down It gradually becomes really difficult form sentences and it feels like the whole world is blurring This usually leads into the physical symptoms I’m describing in this video! 👋🏻 I can feel these episodes coming on/building up beforehand, so i have time to set up my phone on occasions like this 🙃 *this footage is from about a year ago! I recently found it on my hard drive and thought it would be useful to post 🙃 #chronicillness #awareness #fainting #dysautonomia #disability #neurologicaldisorder
disabled grief is not often talked about, but is sadly common ❤️🩹 if you’re chronically ill or you have developed the disability in life, then you’ll probably relate to the feeling of losing your old self the feeling of constantly trying to improve and get back to the person you were before the feeling of disappointment and frustration because you can’t do the things you used to do & your attempts to keep up only push you further into a flareup ✨ but know that if you can relate to this then you are not alone. So many people feel like this and it isn’t something we should feel embarrassed about It is okay to be struggling and not be the same person you were before health issues ❤️ it’s okay to change and regress and grow and shape yourself as you learn who you are, and it’s okay if that person looks different to the one you used to imagine I struggle with change a lot because I’m autistic, so the past few years have definitely been a massive challenge & adjustment - but I can confidently say that I feel like I’m slowly finding my feet, I have no idea where my health will be in the future 🫂 #disabledcommunity #chronicillness #chronicpain #chronicillnessawareness #disabled
#ad ad | how to choose between Visible and other smart watches! ⭐️ i’ve used many watches and heartrate trackers in the past, but @visible.health is the first one which is actually designed specifically FOR managing my chronic illness it doesn’t tell me to stand or guilt trip me into workouts, it doesn’t make me feel bad for not completing my daily exercise rings… it’s the opposite!!👏🏻 as someone who needs to use pacing in daily life (just to get through the day😅) it’s been so so useful to have the data from this armband to properly see & determine when my body needs to slow down hopefully this comparison gives insight into whether this would be a good option for you 💛 💬 feel free to leave any questions in the comments! #chronicillness #disabledcommunity #dysautonomia #chronicfatigue #pacing
testing the @Phoenix Instinct wheelchair luggage system ♿️✈️ this setup has been an absolute game changer when it comes to independent travel! I wanted to test one of these out for years and finally got my hands on one (thank you PI!!) & it truly does live up to the expectations 👏🏻 one thing to keep in mind is the strength that takes to clamp on the wheelchair bar, sometimes it can be quite difficult so it may be difficult for somebody with limited hand function :) once I relearnt spatial awareness and practiced turning, this bag truly made me so much more independent & opened up so many opportunities when it came to travelling and trips I can't wait to see what other trips I can go on with this setup!!! #accessibility #wheelchairuser #disabledcommunity #accessibledesign #disabled #accessibletravel #disabilityinclusion
who do you think did the best? 😂 watch til the end for a surprise #wheelchairuser #disabledcommunity #wheelchair #wheelie #wheelchairskills #fails #fall #disabled
#ad ad | how i plan my days using my visible band 💙 this has honestly changed the game when it comes to managing my energy and choosing which tasks to complete! pacing is much easier since being able to see my heartrate data 📈 it helps to visually see how much i’ve expended my energy throughout the day & be able to pin point which activities cause the most exertion so i can plan what to avoid on harder days i’ve worn my band and used the morning and evening check-in features every single day for the past 6 months - i genuinely have found it incredibly useful!!! ❤️👏🏻 #pacing #chronicillness #chronicfatigue #disabled #visible #heartrate #disabledcommunity #dysautonomia
2024 has taught me so many things, but one of them is that i deserve to be proud of myself (just like we all do) 🌟 I’ve learnt that it doesn’t matter if every day isn’t amazing or full of achievements. It doesn’t matter if I don’t accomplish things in every single second of my life It doesn’t matter if I take a rest day or forget to complete my to-do list. It doesn’t matter if I have to delay deadlines or if I miss out on an event because I’d rather stay in bed Because despite all of those things… I am worth so so much more than my achievements ❤️ and you are too 🫶🏻 There’s so much pressure put on us to be successful in our career & to be busy with a good social life, but also to have hobbies and to enjoy calm activities - it feels like it’s a constant balance between things that in all honesty can’t ever be “fully” balanced !!!! So this year, I’m just being kind to myself and recognising the one achievement of actually being myself 🌈🌈🌈 I hope this conservative a reminder that it doesn’t matter whether you’ve accomplished your 2024 goals or figure out what you want to do in 2025… It is enough to just exist and to be you :) #disabledcommunity #wheelchairuser #disabled #autistic #chronicillness #neurodivergent #youareenough #youareworthy #2024goals #MentalHealth
mental health & disability usually interact with eachother 🧠 the extra battles disabled and chronically ill people have to face often means were more susceptible to mental illness, or generally just feeling crap but equally, it’s harder to do things that benefit our mental health when suffering from physical symptoms too😅 My mental health wants me to go outside and have nature walks, go for runs, be fit and active and healthy, doing things I love But my physical body needs to rest and often can’t get out of bed on the bad days… I’m stuck in a room and often isolated This is the reality for a lot of us disabled people - but if you can relate, then please know that you’re not alone ❤️ #disabledcommunity #disabled #chronicillness #mentalhealthmatters #chronicillnessawareness #neurodivergent
you don’t have to fit in, to have fun!!! 👏🏻 do what makes YOU happy, even if it looks different to the people around you this is a clip from my YouTube video talking about autistic masking & my journey with never truly “fitting in” i’ve spent years trying to make myself do the things other people are, because i want to be part of the fun and not miss out but in reality, we are never going to be happy if we do things that other people want rather than what WE enjoy ⭐️ you don’t have to be “cool” (you already are) ⭐️ you don’t have to drink or party ⭐️ you can stay home or go to bed early ⭐️ you can prefer crafts over sports, or the other way round the most important thing is that you are being true to yourself and not forcing yourself into a box because you feel you should ❤️ #neurodivergent #masking #autistic #autisticadult #neurodivergenttiktok #fomo #anxiety #autismawareness
Replying to @yessir66625 yes, tourettes can cause painful tics 🧠 pain is a not so often talked about but very crap part of having TS unfortunately a lot of us have to deal with injuries, tic attacks, muscle pain, joint issues & more symptoms caused by the repetitive or violent tics 🎗️ not every tic is painful, but any violent motor tic or repetitive movement or sound can become uncomfortable and cause pain over time #disabled #tourettes #tourettesawareness #tourettesyndrome #educational #neurodivergent
despite what many people online assume, being disabled or chronically ill is not all about the good benefits or sharing videos online 😅 experiencing debilitating symptoms every day is not fun. it’s exhausting, painful, isolating, and it can affect every aspect of our lives I’m grateful for the things my disability has given me, like finding community, a passion, resilience… but that will never take away how difficult life is now that I’m disabled ♿️ #d#disabledc#chronicillnessawarenessc#chronicillnessc#chronicpainc#cfsf#fndawarenessd#disabilitya#awareness
running my first shop stall! 🎨🥹 this was a really successful trip down to London and i had so much fun seeing my friends along with selling my products and artwork at the @TourettesAction event!🎗️ It was so nice to see people & set up my table with all my goodies, then getting to meet some of you in person & see people enjoying the things i brought 🫶🏻 I filmed this whole weekend trip - there’s a full vlog up on my youtube channel now 💗 ft @Lauren and @Ceircey 🦋 #neurodivergent #disabledcommunity #tourettesyndrome #artist #smallbusinessowner #disabledtravel
what “walks” can look like as a manual wheelchair user! 🌳♿️ this was filmed back in around April/May when I didn’t have a power assist for my wheelchair & my health flare up was at a much more severe level after outings like this, I would be in a lot of pain and had to spend most of the day in bed recovering from the energy crash and pain 🫂 PEM (post-exertional malaise) is a new symptom I’ve developed this year that’s been incredibly difficult to deal with - it’s common in people with long covid, ME, CFS & similar conditions I’m slowly adapting to make nature & general day-to-day life more accessible for me, and my wheelchair is the main thing that helps! 💛 #awareness #disability #chronicillness #PEM #chronicpain #chronicfatigue #chronicillnessawareness #neurodivergent #longcovid
where did i get my wheelchair frame covers? 🌱✨ an affordable wheelchair decor hack :) #wheelchair #disabilitypride #disabled #wheelchairuser #hack #chronicillness #disability #wheelchairlife #confidence #acceptance #dopaminedecor